Patient Advocacy Advisory Board

One of SNMMI’s main goals, as outlined in the 2010 Strategic Plan, is to engage the patient community and provide information about the uses of molecular imaging for improved diagnosis and treatment. SNMMI maintains a long-standing commitment to supporting patients, partnering with patient advocacy organizations on issues of mutual interest and priority, and providing educational programs for consumers to help them understand molecular imaging and the constructive role it can play in both diagnostic and therapeutic settings. Through this work, we recognized a growing need for the patient voice to be more formally incorporated into SNMMI’s programming and materials.  As such, we convened a Patient Advocacy Advisory Board to provide SNMMI staff, volunteer leaders, and members with the patient perspective with respect to molecular imaging and nuclear medicine matters. One of the first initiatives of this group was to develop this web-site – a comprehensive and user-friendly public resource about molecular imaging and therapy and these disease areas that are using molecular imaging. The content of this website has been reviewed, and will continue to be updated, by experts in the fields of nuclear medicine, cardiology, neurology, and oncology.

Patient Group Representatives

Josh A. Mailman
Chairman
NorCal CarciNET Community
josh @ nextobject.com

Josh A. Mailman holds a BA in Economics from the University of California at Los Angeles and an MBA in Marketing and Finance from the Anderson School of Management at UCLA. He is a Silicon Valley executive with over 20 years of success in the technology field. Mr. Mailman co – created eFax.com where he served as Vice President of Operations in addition to applying for and receiving several patents for his work on eFax’s technology. During his career Mr. Mailman has held executive level potions at Xerox, NBCi and Everyone.net. Mr. Mailman’s last start-up, ChatterEmail was sold to Palm in 2007. Since his diagnose in 2006 Mr. Mailman has focused his time and energy in the Non Profit community currently serving on the executive board of the Society for Integrative Oncology (SIO, www.integrativeonc.org), as president of the Northern California Carcinoid / Neuroendocrine Support Group (www.NorCalCarciNET.org), as a member of the NCI task force for Neuroendocrine Tumors and with Global Health Research Foundation where he also serves as Chief Technology Officer. His work with GHRF has taken him to Uganda and Bhutan where he has been able to use his IT knowledge to decrease the time and effort it takes to track diseases.

William J. Bryant, Esq.
American Heart Association
bbryant @ dfhlaw.com

Bill Bryant is a tax attorney with the Birmingham, Alabama law firm of Dominick Feld Hyde, P.C. He obtained his undergraduate degree in Political Science from the University of Alabama and his Juris Doctor and Master of Laws in Taxation degrees from the University Of Alabama School Of Law. Bill has a transactional practice that has covered a broad spectrum, ranging from the purchase and sale of owner-managed businesses to complex financing transactions for governmental entities involving hundreds of millions of dollars. He is listed in “The Best Lawyers in America®” and “Super Lawyers®”, maintains a Martindale-Hubbell “AV Pre-eminent®” peer review rating and has been recognized by his peers in surveys appearing in various local publications. A strong proponent of community service, particularly as it relates to public health, Bill is guided by the words of George Bernard Shaw, “You see things that are and say, ‘why?’ But I dream things that never were and say, ‘why not?’” Bill has served in leadership positions at both the local and national levels, including serving as Chairman of the Board of the American Heart Association, Inc. and as member of the board of directors of the Alliance for a Healthier Generation, Inc

Betsy de Parry
Leukemia and Lymphoma Society
betsydeparry @ gmail.com

Since her recovery from non-Hodgkin lymphoma in 2002, Betsy has authored two books about the experience of cancer and written numerous essays and articles, including her popular “Candid Cancer” column for AnnArbor.com, which is read by thousands around the world. She has produced and hosted reports called “Candid Cancer” for a PBS show and, in collaboration with the Lymphoma Foundation of America, produced and hosted webcasts about cancer-related issues. She is a frequent speaker to healthcare and patient groups and a frequent participant in awareness, educational and advocacy efforts. She has been featured on NPR and in The New York Times and her experience with cancer was the subject of a documentary which aired on PBS in 2010. She is the founder of Candid Cancer, a nonprofit whose goal is to help survivors of all kinds of cancers to achieve the highest levels of emotional and physical well-being after diagnosis. Betsy serves as Heath Policy Advisor to the Lymphoma Foundation of America and represents the Leukemia and Lymphoma Society on SNMMI’s PAAB. She lives and works with her husband in Ann Arbor, Michigan where she is vice president of marketing and sales for their homebuilding and land development company.

Keith N. Fargo, Ph.D.
Alzheimer’s Association

Dr. Fargo is the Director of Scientific Programs & Outreach at the Alzheimer’s Association. He provides oversight for the Alzheimer’s Association TrialMatch program, a service that connects people with ongoing clinical studies in their area. Dr. Fargo is also responsible for the Alzheimer’s Association’s scientific publications, including Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association and Alzheimer’s Disease Facts and Figures. In addition, he oversees the Alzheimer’s Association International Society to Advance Alzheimer’s Research and Treatment (ISTAART). Dr. Fargo received his Ph.D. from Indiana University, then completed a postdoctoral fellowship at Loyola University Stritch School of Medicine. Before joining the Alzheimer’s Association, Dr. Fargo was a Principal Investigator with a focus on regenerative processes in the nervous system, with appointments to the Edward Hines Jr. VA Hospital Rehabilitation Research & Development Program and the Loyola University Chicago Department of Molecular Pharmacology & Therapeutics.

Arnold Fridland
Colon Cancer Alliance

Diagnosed with stage III colon cancer in 2008, Arnold had two surgeries and chemotherapy treatments after relapse with a lung metastasis but has been in complete clinical remission since 2010. As a postdoctoral fellow in the 1960′s he had the privilege of working with Dr Charles Heidelberger (the discoverer of 5-FU) on the pharmacology and mode of action of this drug, which still remains the standard of care for colon cancer treatment and other gastrointestinal malignancies. As a member of the Colon Cancer Alliance (CCA) he has been a speaker to healthcare groups and a contributor in the CCA buddy system in advocacy and cancer awareness efforts. Arnold is a retired pharmacologist after working as a research scientist in both anti cancer and antiviral drug research in academia and as a vice president for drug metabolism and pharmacology in the biotech industry. He now works as a part time consultant and lives with his wife in Boulder, Colorado.

Jan Manarite
Prostate Cancer Research Institute

Jan began working for the Prostate Cancer Research Institute in 2001, shortly after her husband was diagnosed with widely metastatic disease, and PCRI helped her to become a powerful advocate for his treatment decisions. In her 12 years at PCRI, Jan has fielded hundreds of calls to PCRI’s free Helpline, authored 13 full length articles for PCRI’s free newsletters , and conducted the advocacy program called Raise A Voice, which was responsible for successfully bringing together 7 different PC organizations for a common cause on FDA issues. She serves on multiple committees, and is responsible for much of the networking, problem-solving, and communications of the Expanded Access Committee, which helped get 3 different treatments to almost 1,000 metastatic prostate cancer patients before FDA approval, including the recently approved treatment Xofigo. Jan is also an avid public speaker on patient empowerment, and her story with her late husband, Dominic, has been featured countless times on TV, radio, and newspaper, including NBC, NPR, W4CS, NY Times, Wall St Journal, Caregiver Magazine, and much more. Jan has done most of her advocacy and education while caretaking for her husband, Dominic, in his 13 year cancer battle. Although he beat every survival statistic you might quote, Dominic lost his cancer battle in April of 2013. Jan continues the advocacy work that made him proud. Jan holds a BA in Philosophy/Religion from Spring Arbor University, with emphasis on Sociology and Psychology.

Laurel J. Pracht
Ovarian Cancer National Alliance
blpljp6 @ msn.com

Laurel Pracht is a 13 year survivor of ovarian cancer. A graduate of the University of NE College of Business, she had a successful career as a real estate broker in Colorado. Her advocacy for women with ovarian cancer led her to work with the National Oncologic PET Registry to achieve coverage of PET scans for several types of cancer by Medicare. She is the founder / director of the annual charitable Teal Ribbon Golf Tournament in Sun City, AZ and Pres. of the West Valley Ovarian Cancer Alliance, a 501(c) (3) association in the NW Phoenix area. She is the Arizona coordinator for the Survivors Teaching Students-Saving Women’s Lives ®, an Ovarian Cancer National Alliance program. Laurel is a Patient Advocate with the Gynecologic Oncology Group Cancer Prevention and Control Committee. Currently she serves as a consultant to the University of Arizona Cancer Center. Laurel was selected as a Consumer Reviewer with the Congressionally Directed Medical Research Program, Dept.of Defense Ovarian Cancer Research. Laurel was appointed as a member of the Patient-Centered Outcomes Research (PCORI) Patient Engagement Advisory Panel, authorized by Congress as part of the Affordable Care Act. She provides peer counsel to ovarian cancer patients and is dedicated to conquering this disease that has “claimed the lives of too many of my friends!”

Sheila Ross
Lung Cancer Alliance

Sheila Ross is a senior policy advisor at Lung Cancer Alliance (LCA), the leading national lung cancer patient support and advocacy organization originally founded in Washington State in 1995. In 2005, as a two time survivor of lung cancer, she helped reconstitute and relocate LCA to Washington DC in order to bring the patients’ voice directly to public health policy makers and implementors. The emphasis on advocacy has been critical in reversing decades of stigma and neglect in public health policy on lung cancer which causes as many deaths each year as breast, prostate, colon and pancreatic cancers combined. She worked in Chief of Staff and other leadership positions in the U.S. House of Representatives and the U.S. Senate for 20 years for both Republican and Democratic members, and was a member of then First Lady Hillary Clinton’s Health Care Task Force in 1993 and 1994.  She is a member of the Integration Panel for the Department of Defense’s Lung Cancer Research Program within the Congressionally Directed Medical Research Program (CDMRP), on the Steering Committee of the Coalition for Imaging and Bioengineering Research (CIBR) and a member of the Advanced Medical Imaging Coalition (AMIC). In 2009, she received the I-ELCAP Lifetime Achievement award. She has spoken extensively on lung cancer objectives, including at the Opening Session of the RSNA in Chicago in November, 2012.

Bobbi Smith
American Thyroid Association
thyroidexec @ thyroid.org

Barbara “Bobbi” Rath Smith started with the American Thyroid Association (ATA) in 1988. She then served as the Foundation and Government Relations Director for the Association for Healthcare Philanthropy and as Associate Director of the National Association of Hispanic Journalists, where she orchestrated registration of 5000 journalists of color at the first-ever ‘Unity ’94’. She became the ATA’s first executive director in 2001 with goals of growth and collaboration that continue to be realized. Bobbi is a native Washingtonian, graduated from Federal City College (now the University of the District of Columbia). In her early career, she was a neuropsychology technician at the DC VA Hospital and also trained as a Psychodramatist at St. Elizabeth’s Federal Mental Hospital. She has done graduate work at the University of Maryland- Counseling /Personnel Services and at the University of Virginia- Urban / Environmental Planning. Married 43 years, she has three children and a grandson. Her volunteer work focuses on developing and teaching progressive religious education curriculum. Bobbi is dedicated to the artful management of a professional medical society devoted to thyroid care and advancing thyroid research.

Scott Williams, MPA
American Cancer Society Cancer Action Network

Scott received his BA in Political Science with Honors with a minor in Business Management from Moravian College in Bethlehem, PA, and a Master’s in Public Administration (MPA) from American University.  He is currently Director of Alliance Development at the American Cancer Society Cancer Action Network, the nonprofit, nonpartisan advocacy affiliate of the American Cancer Society which supports evidence-based policy and legislative solutions designed to eliminate cancer as a major health problem. ACS CAN works to encourage elected officials and candidates to make cancer a top national priority and gives ordinary people extraordinary power to fight cancer with the training and tools they need to make their voices heard. Scott is actively sought out as a speaker and resource on men’s health issues by the media, policymakers, public health professionals, physician key thought leaders, and other patient advocacy leaders. He has been featured as an expert in the New York Times, CNN, MSNBC, Washington Post, Baltimore Times, Medicare Reimbursement Weekly, Chicago Tribune, National Public Radio, St. Petersburg Times, Inside CMS, Dallas Morning News, Seattle Post-Intelligencer, among others. Scott has presented at the U.S. Food and Drug Administration (FDA), Congressional Black Caucus Legislative Conference, University of Indiana, University of Maryland – American Student Medical Association, Rotary International, Massachusetts Medical Society, World Congress on Men’s Health, State Medicaid Pharmacy & Therapeutics Committees, the United States Senate, and more. He attended and spoke at health policy briefings and receptions at both the 2008 Democratic and Republican National Conventions.

Frederick Woodlief, III, DDS
Parkinson’s Disease Foundation
fp woodlief @ gmail.com

Dr. Woodlief was born and raised in Richmond, Virginia. After receiving a biology degree at The College of William and Mary, he completed his D.D.S. training at The Medical College of Virginia in 1976. Most of his 33 year career was spent practicing family and cosmetic dentistry in a large multi-specialty group practice until his retirement in 2009. He holds Fellowship and Mastership in the Academy of General Dentistry, a worldwide organization emphasizing continuing dental education. He was an adjunct clinical professor for 10 years at the MCV/VCU School of Dentistry. Dr. Woodlief is a member of the Richmond Movers and Shakers, a local group of PD patients who have raised over 5 million dollars towards bringing a movement disorder program and nationally known neurologists to the Medical College of Virginia in Richmond. His desire is to facilitate the education of dental providers in the special needs of patients with Parkinson’s Disease. Dr. Woodlief serves on the Parkinson’s Disease Foundation’s scientific grant review committee and in 2012 served as a patient advocate for the Center of Molecular Imaging Innovation and Translation (CMIIT) Industry Partner Circle. He serves on the fundraising committee for the Virginia Commonwealth University Parkinson and Movement Disorder Center and is a patient advocate and consultant on their Regional Advocates in Movement Disorders program. He tables for the PDF at local and regional events. He enjoys speaking on the topics of Dentistry, Parkinson’s Disease and patient advocacy/clinical research. He has attended numerous continuing education courses and webinars on these topics.

SNMMI Outreach Committee Representatives

Andrei Iagaru, MD
SNMMI Outreach Co-Chair SNMMI
Targeted Radioisotope Therapy Outreach Co-Chair

Dr. Iagaru completed medical school at Carol Davila University of Medicine, Bucharest, Romania, and an internship at Drexel University College of Medicine, Graduate Hospital, in the Department of Medicine in Philadelphia. He began his residency at the University of Southern California (USC) Keck School of Medicine, Los Angeles, in the Division of Nuclear Medicine, where he was the chief resident. Dr. Iagaru finished his residency and completed a PET/CT fellowship at Stanford University in the Division of Nuclear Medicine and Molecular Imaging. He is currently an Assistant Professor of Radiology – Nuclear Medicine at Stanford University Medical Center. His research interests include whole-body MRI and PET/CT for early cancer detection; clinical translation of novel PET radiopharmaceuticals; radioimmunotherapy; optical imaging of breast cancer; as well as PET/CT imaging for thyroid, breast, cervical and ovarian cancers, melanoma, lymphoma, and sarcomas. Dr Iagaru is also interested in advanced imaging methods for cardiac evaluation. He presented more than 60 abstracts at national and international meetings and published more than 40 papers in peer-reviewed journals, as well as 3 book chapters. Dr Iagaru is currently Assistant Professor of Radiology at Stanford University and Co-Chief of the Division of Nuclear Medicine and Molecular Imaging.

Henry VanBrocklin, PhD
SNMMI Outreach Co-Chair

Dr. VanBrocklin received his Ph.D. in Radiopharmaceutical Chemistry from Washington University St. Louis under the mentorship of Prof. Michael Welch. He furthered the development of positron-labeled estrogens, progestins and androgens for tumor imaging. As a US Department of Energy Alexander Hollander Distinguished Postdoctoral Fellowship he continued his research on positron labeled steroids and fatty acids in the laboratory of Prof. John Katzenellenbogen at the University of Illinois. In 1992 Dr. VanBrocklin moved to Lawrence Berkeley National Laboratory where he was a Staff Scientist and Radiopharmaceutical Chemistry Group Leader in the Department of Functional Imaging until 2005. He is currently Professor of Radiology and Biomedical Imaging at the University of California San Francisco (UCSF) and Director of Radiopharmaceutical Research in the Center for Functional and Molecular Imaging.

Hossein Jadvar, MD, PhD, MPH, MBA
SNMMI Targeted Radioisotope Therapy Outreach Co-Chair

Hossein Jadvar, MD, PhD, MPH, MBA is an Associate Professor and Vice Chair of Research in the Department of Radiology at the University of Southern California (USC), Los Angeles. He received the PhD (1988) in bioengineering from the University of Michigan, the MD (1993) from the University of Chicago (Pritzker), the MPH (2005) from Harvard University, and the Executive MBA (2007) from the USC. His post-graduate medical education included an internship in internal medicine at UCSF (1993-94), a residency in diagnostic radiology and nuclear medicine at Stanford University (1994-98) and a fellowship in PET at Harvard Medical School (1998-99). He is board certified by ABNM and CBNC. He holds eight US patents and has received awards for his research efforts from the NIH, RSNA, SNMMI, the University of Chicago, and was elected as Fellow of the ACNM and the USC Center for Excellence in Research. He is member of multiple NIH review panels and on the editorial boards of Clinical Nuclear Medicine (Deputy Editor), Journal of Nuclear Medicine, Molecular Imaging and Biology, American Journal of Roentgenology (Assistant Editor), and Radiology (Associate Editor).

Ruth Dean Tesar, BS, CNMT
SNMMI-TS Representative

Ms. Tesar holds a Bachelor of Science degree from Colorado State University, Nuclear Medicine Technology Training from the University of California at Davis, and has completed graduate work in health administration and health policy at the University of Southern California. She has been involved in the field of Molecular Imaging since 1993. She gained her experience in PET center operations where she continues to provide management oversight as the CEO to Northern California PET Imaging Center, one of the first free-standing PET centers established in the US. She was intensely involved in gaining insurance coverage for PET procedures by private payers and the Centers for Medicare and Medicaid Services. She has served as President of the Institute for Clinical PET (now the Academy for Molecular Imaging) in 1998/99 and served as a Board member of that organization for seven years. She has been a member of the Society of Nuclear Medicine and Molecular Imaging since 1983. She was a member of APC Task Force 1999-2002; Program Chairperson of the Northern California Technologist Section 1983-1885; Continuing Education Committee 1991-1993; and the Public Relations Committee 1993-1996.

SNMMI Leadership

Gary L. Dillehay, MD, FACNM, FACR
SNMMI President

Dr. Dillehay holds a Bachelor of Science degree from the University of Minnesota and received his medical training at the Mayo Medical School in Rochester, Minn. He has served as professor of radiology at the Northwestern University Feinberg School of Medicine since 2006. Prior to that, he held various academic appointments at Loyola Stritch School of Medicine. Dillehay is certified by the American Board of Radiology and the American Board of Nuclear Medicine (ABNM). An SNMMI member for over 25 years, Dillehay has played an active role in the society. His most recent involvement with SNMMI includes serving as chair of the Coding and Reimbursement Committee and as a member of the Commission on Health Care Policy, the Computer Technology Assessment Committee and the American College of Nuclear Medicine/SNMMI Government Relations Committee. He also is the SNMMI delegate to the American Medical Association (AMA), and he has served in multiple leadership positions in the Central Chapter of SNMMI. He has published over 19 peer-reviewed journal articles and has authored 10 book chapters and two books.

Peter Herscovitch, MD
SNMMI Vice President Elect

Dr. Herscovitch earned his bachelor’s degree in electrical engineering and medical degree from McGill University. He then completed a residency in neurology at the Montreal Neurological Institute, followed by a fellowship in PET at the Washington University School of Medicine, St. Louis, Mo., as a fellow of the Medical Research Council of Canada. He was subsequently a member of the departments of neurology and radiology at Washington University. He has been at the National Institutes of Health since 1987. He is currently director of the positron emission tomography (PET) department at the National Institutes of Health Clinical Center, Bethesda, Md. Dr. Herscovitch has published widely on functional brain imaging topics, including cerebral blood flow, neuroreceptor measurements, brain mapping and brain abnormalities in neuropsychiatric disease. He has coauthored three books on PET scanning and brain imaging. Dr. Herscovitch is chair of SNMMI’s Scientific Program Committee and SNMMI Vice President-elect; he will serve as President in 2014-2015. He was the year 2000 recipient of SNMMI’s Kuhl-Lassen Award for Brain Imaging. He is a Fellow of the American College of Physicians and the Royal College of Physicians of Canada. He has authored or co-authored 150 journal articles, 33 book chapters and 3 books.