PCORI Asks Public Input on Working Definition of 'Patient-Centered Outcomes Research'

July 20, 2011

PCORI Asks Public Input on Working Definition of 'Patient-Centered Outcomes Research'

On July 20, 2011, The Patient-Centered Outcomes Research Institute (PCORI) will start the beginning of a process to receive public feedback on the working definition of “patient-centered outcomes research,” which is the main focus of PCORI’s work. This feedback is PCORI’s first structured solicitation of public input, since it was created in Congress by the Patient Protection and Affordable Care Act as an independent, non-profit research organization to help patients and those that care for them with informed health care information.

The working definition says “Patient-Centered Outcomes Research helps people make informed health care decisions and allows their voice to be heard in assessing the value of health care options.”It answers the following four patient-focused questions:

  • Given my personal characteristics, conditions and preferences, what should I expect will happen to me?”
  • “What are my options and what are the benefits and harms of those options?”
  • “What can I do to improve the outcomes that are most important to me?”
  • “How can the health care system improve my chances of achieving the outcomes I prefer?”

There will be a 45-day input period held by PCORI on the definition that will conclude on September 2.  To offer feedback on the questions above, please go to PCORI’s website at www.pcori.org or by returning a questionnaire by either mail or email. After the 45-day input period, qualitative and quantitative studies will be conducted and the feedback received will help redefine the working definition.

To review PCORI's full press release, please go to http://www.pcori.org/images/PCOR_Input_Process_Release.pdf